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Samuel Boiyo: Living with mental illness

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Samuel Boiyo Ngige has been receiving mental health treatment for about twenty years. His journey has seen him stigmatized and mistreated by members of the public who do not understand him and, at one time, was arrested. He shares his experience of living with mental illness with TEBBY OTIENO.

Samuel was born and brought up in Nakuru’s Elburgon area. He was enrolled in a primary school near his home. His academic journey was off to a good start with little to no incidents. However, this journey would be interrupted later by on-and-off health problems that kept him out of school frequently.

“I missed lessons many times because I would complain of stomachache every time I woke up in the morning, and lacked energy and zeal to go to school,” he narrates, adding that neither his parents nor his teachers understood him.

As his condition deteriorated, he dropped out of school while in form two. His decision to drop out was not received well by his parents who suspected that he was using alcohol and bhang. All the while, Samuel did not lose hope and visited various health facilities in his area to find out what was ailing him. Unfortunately, he didn’t get a proper diagnosis. His way of coping was keeping away from people whom he felt didn’t understand him.

“I would lock myself in my room not wanting to get out of bed. I didn’t have a bath for days on end and was not motivated to do anything,” he says of his struggles.

Mental illness diagnosis…

As his health deteriorated, his physical appearance took a hit and people in the community started pointing fingers at him, while some feared interacting with him. In fact, from his recollection, there were times people ran away when he approached them. He took all this in his stride. But when some villagers chased him away whenever they saw him, claiming he was going to burn their homes, he couldn’t take it anymore. He left home to head to Nairobi, where he reasoned no one would recognise him. However, despite changing the environment, his suffering persisted.

He was later taken to court and the magistrate ordered that he be taken to Mathari Mental Hospital to have his mental health checked. The psychiatrist’s report presented to the court revealed that he had a mental illness. The court found him not guilty and asked that he gets medical assistance.

The treatment journey…

Samuel started treatment at the Mathari Hosp. He st gled to keep up with the treatment, as he often forgot to take his medication and he did not have a support system to even remind him to attend clinics regularly, as ordered by the doctors. He eventually moved back to his parent’s home but there was also not a lot of support as they were not aware of his mental illness. Also, traveling to Nairobi to seek treatment was difficult without money and he would often miss doctor’s appointments.

After several hospital visits, his family members gradually came to understand his condition. Their support encouraged him to stick to the doctor’s advice and take his medication regularly.

“With the encouragement from my doctor and assurance that my condition will improve if I took my medication, I slowly began to take his advice seriously. I told myself that I didn’t want to be admitted to hospital and also didn’t want people avoiding me, so I stuck to my medication,” he explains.

Looking back at the twenty years he has been on medication, Samuel, now 38 years old, says he has seen a lot of improvement in his condition and progress towards a normal life. First, he is happy that people now relate well with him, both in the village and in Nairobi. He is also happy that he now takes his medications without waiting to be reminded.

 

Samuel says that the country has made a lot of progress in dealing with mental health. Unlike when he began treatment. there are now more psychologists and psychiatrists. He can now walk confidently into Mathari Teaching and Referral Hospital and request counseling services and get them. He is also happy that the new mental health law, signed by former President Uhuru Kenyatta, has elevated the status of people suffering from mental illnesses. He adds that NHIF now pays for his treatment, which has been a huge financial relief to him and his family.

“The cost of treating mental illness is high and often patients suffer because they do not have access to treatment. Many times my parents could not afford to give me money to travel to Nairobi to get my medication. In those instances, I would strip naked, shout and sing loudly, and also engage in very disruptive behaviour. Of course people did not understand and I was treated like an outcast. Now that I have proper medical care, I don’t suffer from those episodes anymore,” he explains.

Adapting to hard economic life…

Samuel relocated from his home in Nakuru to live in Nairobi, as the distance was disrupting his treatment. He now lives conveniently near the Mathari Teaching and Referral Hospital and he is able to attend all his doctor’s appointments.

His relationship with the doctors has remarkably improved, making his treatment journey more bearable.

He also started a business with encouragement from psychologists at the hospital who advise mental health patients during counseling sessions not to be idle. He started by buying handkerchiefs from Gikomba market and hawking them. His first customers were people within the hospital premises. With time, he saved some money to expand the business. He has expanded to selling jewelry, such as earrings for ladies. The proceeds from the business enable him to buy medication without relying on other people.

Since accepting his condition and adhering to taking medication and attending doctor’s appointments, he is able to live an independent life. He encourages people with mental illnesses to take their medication, as this definitely changes life for the better.

“If you are taking medication and are not seeing improvements, don’t stop. See a doctor who may change your dosage or prescription, after examining you.” he advises.

He urges society not to judge or stigmatize those suffering from mental illnesses, but instead support them. This support will go a long way to make life better for them: and also help them integrate into society.

Samuel has also become an advocate for mental health and he spends time at the Mathari Hospital talking to and encouraging other patients.

“I get very happy when someone I helped calls me to tell me they were feeling better after following my advice and sticking to their medication,” he says, as we conclude this interview.

This story was first published in our volume 10 2022 issue: https://epaper.parentsafrica.com/issues/october-2022

Cover Story

Growing up while caring for aging parents

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You’re in your twenties or early thirties, still renting a bedsitter or sharing a one bedroom with a roommate. You juggle two side hustles and a job that barely covers rent and data bundles. Your salary comes in and half vanishes on fare, food and airtime top-ups before the month even starts.

Then your phone rings.

It’s Mum. Her voice is softer than usual.
“The knee is paining again. The doctor said I need new medicine but the bill…”
She trails off because she doesn’t want to finish the sentence. You already know what comes next.

Or its Dad, the man who once sent you pocket money while you were in campus, now asking quietly if you can send something small for electricity tokens because the prepaid meter is blinking red again.

Your chest tightens. Not just because of the money (though that’s part of it) .But because suddenly you hear the clock ticking louder.

They’re getting older. The strong hands that carried you. The back that bent over charcoal stoves to cook for you. The feet that walked kilometres to pay your school fees. Those hands shake now. That back is curved. Those feet tire faster.

You’re supposed to be the one helping now. That’s how it’s meant to go in our families. You finish school, get a job and start sending money home. You lift them the way they lifted you.

But what if you’re still drowning? What if getting it together feels like a finish line that keeps moving further away every year?

The fear is heavy.

You lie awake calculating. Rent is due. An M-Shwari or Fuliza loan repayment is pending. Your own medical cover lapsed last month. And now Mama needs money for a specialist visit. You send what you can. Perherps two thousand shillings and feel like a failure for the rest of the week.

Every time they say, “Pole, it’s okay. God will provide,” it stings more than if they had scolded you.

You start avoiding calls sometimes. Not because you don’t love them, but because picking up means hearing the tiredness in their voice and knowing you can’t fix it yet. You scroll job sites at two in the morning, apply to everything and pray for one breakthrough that will let you breathe and send real help home.

But the breakthrough is slow in coming. Meanwhile, arthritis is winning, blood pressure is rising and the village clinic queue is getting longer.

The fear

There’s the fear that they’ll suffer in silence because they don’t want to burden you. . The fear that you’ll never give them the easy life they sacrificed for.

And the deepest fear of all; that they’ll leave this world thinking they failed you, when really you feel like the one who failed them.

Even in the middle of that panic, there are small truths worth holding onto.

What keeps you going

Your parents didn’t raise you to be perfect. They raised you to try. They know you’re hustling. They see the late nights, the side gigs, the way you stretch every shilling. When you send one thousand instead of ten thousand, they don’t see failure. They see effort.

You are not late. You are in process. The economy is brutal, opportunities are few and the cost of living keeps rising but that doesn’t mean your love is small. Love shows up in the five hundred shillings of airtime or M-pesa you top up and in the weekends you go home empty handed but stay the whole day washing clothes, cooking and sitting with them.

One day, maybe sooner than you think, the season will shift. You’ll land the better job, clear the debts and start sending consistent help. You’ll take them to that private hospital, buy the good medicine and fix the leaking roof.

But even before that day arrives, you are already honouring them by refusing to give up.

Your parents didn’t keep score when they were raising you.
They won’t start now.

Keep going.
They’re still proud.
You’re still becoming even if it’s taking longer than either of you hoped.

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Cover Story

The version of you that only exists at home

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“I am an adult everywhere, except at home.” If that line hits with a mix of recognition and quiet discomfort, you’re not alone.

You step through the door of your childhood house or the family home you still visit. The capable adult you have become starts to fade almost instantly. Your shoulders drop. Your voice softens. You apologise before anything goes wrong. Suddenly you feel twelve again. You scan for approval. You brace for the familiar scorecard that lives only in this kitchen.

Why this happens

This is not pretending. It is regression wired deep. Family homes are the original emotional operating system. No matter how far you have come with therapy, career wins or independence, certain smells, sounds or sighs trigger version one of you. Old scripts replay automatically. You hunch at a particular sigh. You rush to prove yourself. You laugh too sharply at an old nickname.

The patterns formed when your nervous system was still developing. In homes with inconsistent love, high criticism, unspoken rules about emotions or where you adapted early to stay safe or seen, those survival strategies became muscle memory. Love felt conditional. Mistakes brought shame. You learned to read moods and shrink yourself. When the original cues return, the body remembers before the mind does.

The family’s role

Often the family has not updated their view of you either. They still see the child who spilled juice or the teenager who slammed doors. Two outdated versions try to connect. Instead of ease you get glitches. You feel too much and not enough at once.

Finding your way forward

Awareness is the turning point. Naming it steals half its power. You can observe the old role without fully stepping in. You can choose new responses. Even if they start silently, you can think, “I am not that twelve year old anymore.”

Some people carry the home version forever. That is okay if it does not cost their peace. Others learn to visit as adults. They love. They help. They do not hand over their selfworth.

The most healing path happens when the family updates together. A parent says, “You have become extraordinary,” and means it. A sibling drops childhood jabs. The house stops feeling like a courtroom.

Until then, know this. Shrinking a little when you walk in does not mean you are broken. It means you are human. You are wired for belonging even when belonging stings.Next time the throat tightens, breathe. Look around. Whisper to yourself, “I am an adult everywhere. Including here.” .

Watch how slowly and stubbornly the younger ghost steps back.

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Mental Health

Why Celebrating Small Wins is Better for Your Child’s Mental Health

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Children don’t progress in large or uniform strides; they move in small, jagged intervals. Those moments mean a lot to their development and growth.

When parents acknowledge the little successes, children feel valued, which in turn supports their emotional well-being and contributes to enhancing their confidence over time.

Successes, however small, create confidence

Making their bed on a rough morning, having another try after a mistake might be a small thing, but they represent big wins for your child. They don’t have to be perfect to succeed when their effort is noted and appreciated. Their confidence grows from trying and being their true self, not just from achieving the desired results.

Reduced pressure leads to reduced anxiety

When we emphasise big wins, children can feel afraid of failure and give up. Observing their victories, however small, sends a different message; mistakes are part of the learning process.

This evens out your pressure and helps you calm down. You notice this same idea in your children’s books: try new things, make mistakes and just keep on going.

Progress doesn’t always follow a straight path

Children show progress, withdraw, and move sideways, sometimes all in the same week. A child can have a happy school day one day, the next day be sad or angry, and not want to wear their school uniform.

When parents recognise something good even on a rough day, it helps them to know that one bad moment doesn’t make all the other good moments go away. That perspective can support a healthier mindset.

Recognising skills allows emotions to grow

If a child pauses to react, names a feeling, or asks for help, they are learning. Acknowledging these moments helps cope healthily. With time, children learn how to regulate their emotions and manage them effectively.

Some children find small successes important

For children with anxiety, neurodivergent or low self-esteem, progress can sometimes feel like a difficult task. Acknowledging any of their accomplishments can help them realise that every effort counts.

It can help their mental health for a long time at a later stage.

A small acknowledgement can have a big impact

Celebrating wins doesn’t have to involve a gift or a pat on the back.  At times, a smile, a word of reassurance or a moment of pride is enough. The critical thing is that the child feels truly seen.

Having fun together deepens connections and intensifies motivation.

When parents make small celebrations, children understand that growing up is more important than being perfect. They realise they are worthy of value for who they are becoming, rather than what they do.

Such an understanding builds emotional resilience that will remain throughout their entire life.

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